Tag Archives: Easterseals

Race, Equity and Anti-Bias Training Staff Perspective, Part 2

This past year, our country faced race and equity issues that require conversation and change at every level. In an effort to truly understand these issues and affect change, Easterseals has begun Race, Equity and Anti-Bias training, which will be provided to every staff member. The process will include conversations about race, equity and bias within Easterseals and the communities we serve. These conversations will help guide future trainings to address concerns and issues within our organization.

The training will occur in small groups to help ensure that staff feels comfortable to discuss their experiences and their concerns about these issues. The trainings are being facilitated by Andrea Lawful Sanders. You can learn more about her at https://alawfultruth.com/about/

Ivy Lewis, Easterseals CFO, shared her experience through a Q & A session after her recent training.

Why do you think this type of training is important for Easterseals? 

I think this type of training is important for each and every human being. It is important that Easterseals begin and continue to conduct this type of training to open the lines of communication on the often avoided conversation of Race and Equity. Easterseals serves a diverse population and while there is some diversity among its staff, it is far from proportional with our clients. It is equally important for Easterseals to help its employees break down the barriers that exist due to implicit bias and dispel untruths that far too long been taken as fact. By providing Race, Equity and Anti-Bias training to employees, Easterseals will ultimately provide a greater service to many of our clients if staff truly understanding the disabilities they face often outweigh their medical diagnosis.      

How do you think working at Easterseals has impacted your view of equity and inclusion? 

My view has widened during my time at Easterseals in terms of equity and inclusion for differently-abled (instead of disabled) people. However, working at Easterseals has done nothing to change my view on Race and Equity. Easterseals is a microcosm of the nation as a whole. I am a black woman living in America for all of my life, more than half a century now. Whether within in the confines of an Easterseals building or not, what I experience as a black woman does not change. My blackness doesn’t go away if I don’t mention it or people claim they don’t to see color. However, I appreciate Easterseals for taking the first step in recognizing the enormity of this problem and providing staff with this training. Perhaps with this training staff will be inspired to learn the truth about the inequities that exist for people of color which began more than 400 years ago and surprisingly still exists today. If staff share this knowledge with those outside of Easterseals to affect change, working at Easterseals will have an impact on my view of equity and inclusion from Race, Equity and Anti-Bias perspective.    

What was the most valuable thing about this training from your perspective? 

The most valuable thing is that Easterseals thought it important enough to provide this training to every employee. Equally important is engaging the incomparable Ms. Andrea Lawful-Sanders to facilitate the discussion and provide tools to break down the barriers that separate different points of view as well as building blocks for a better understanding to bridge the divide.

What are your thoughts on how we can be more inclusive in our everyday lives? 

I think it’s simple, to be more inclusive in our everyday lives we just need to take these words to heart…  “I’m starting with the (wo)man in the mirror, I’m asking him (her) to change his (her) ways. And no message could’ve been any clearer, if you wanna make the world a better place, take a look at yourself and then make a CHANGE.”
Man in the Mirror – Michael Jackson

Race, Equity and Anti-Bias Training Staff Perspective, Part 1

This past year, our country faced race and equity issues that require conversation and change at every level. In an effort to truly understand these issues and affect change, Easterseals has begun Race, Equity and Anti-Bias training, which will be provided to every staff member. The process will include conversations about race, equity and bias within Easterseals and the communities we serve. These conversations will help guide future trainings to address concerns and issues within our organization.

The training will occur in small groups to help ensure that staff feels comfortable to discuss their experiences and their concerns about these issues. The trainings are being facilitated by Andrea Lawful Sanders. You can learn more about her at https://alawfultruth.com/about/

The following post is by Mildred DelValle Morales, a Speech Language Pathologist at our Early Intervention Center, in which she shares her perspective on the training.

I have been working for Easterseals of SEPA for 4 years now and have met a wonderful group of peers that address each day with passion. Many of them I can say are now my friends. Working every day in an intensive roller-coaster of emotions, adventures, challenges, celebrations and paperwork can be overwhelming if you take it on by yourself. Feeling part of a team was my first expectation when I started working at Easterseals and it has truly been a dream come true. I couldn’t serve the population we serve without such a supporting staff.


After 25 years in my profession as a Bilingual Speech and Language Pathologist, I can honestly share that I feel like a student. I learn from everyone around me including the kiddos we serve every day. As part of this agency, I am used to attending trainings but this year’s Anti Bias training really touched my heart. I guess we all expected the same type of training where you listen and ask questions, but this time it was different. I felt as if I was participating of a retreat where I had the chance to know about others true stories and how everything happening now in our community impacts what they do. Feelings can easily be dismissed by stating a word or simply describing it with a sentence but sharing your feelings and thoughts as part of a conversation where we all participate as equals, is refreshing. During the training I was able to transport myself to my childhood even when others were sharing their own experiences. I found myself feeling excited, happy, mad, emotional as I listen to my coworkers shout out the truth about what is true in their lives. I did hold back many times so that I could listen to others, because I grew and added to my experience of life as they shared theirs. I can’t wait to meet again and continue this journey building relationships, learning from each other and coming up with strategies that will allow us to see with new eyes.


Feeling thankful and excited at what is to come!

Milly and her husband, Dr. Jose R. Irizarry and their dog Ginger, participating in the virtual Walk With Me

The Importance of Enthusiasm

by Jennifer Latt

This year has been unique for all of us in so many ways.  If I am being completely honest, I have to admit that when we were told we were moving towards doing virtual therapy this past spring, I thought “I can’t do it!”  I had no vision how this could take place and I doubted myself even more.  I have learned it takes a lot of planning and communication with the families.  When I work in the Easterseals building, it is pretty easy for me to roll in and get started with a session.  I have been working in the physical therapy department for years.  I have a plethora of ideas in my head that I can pull out for whatever I think we need to work on that day.  I know what the PT gym has in it, as far as things to play with and use, to help our children meet their sensory needs.  At first, I thought “how am I going to get all this information across to parents?”   I began to do my research on virtual sessions and then I needed to just buckle down and give it a shot.

My first plan of attack was to come up with what I wanted to accomplish with my session for a particular child.  Next, I would try to find pictures of the activities or I would actually have my son step in and I would take pictures of me helping him in different positions to show families what I was doing.  I would email these plans to the parents the night before so they could prep.  I also asked families to give me a list of items that they had at home, favorite toys, and even take a picture of their playroom so I knew what I could work with.

It has truly been a joy to be able to connect with families during this time.  I know that most people would not wish to be trapped at home trying to work and teach their kids and get their therapies in.  However, it has been so amazing for me to be able to connect with families and get the opportunity to see how they interact.  It has also been beneficial for families to get a greater understanding of what we do and why we do certain activities.

The one obvious down side of all of this for me has been the frustration of not being hands on with the children and not always being able to elicit the intended results.  Flexibility has been the key!  I want to applaud all the parents out there who have had to put their homes and their lives on display.  It is not easy trying to take over the role of therapist or teacher, and understand what we are asking you to do.  Know that from my point of view I think the families have been remarkable through all of this.  The most important thing I wanted to share is, that as parents, you need to allow yourselves to be silly during your sessions with your children.  I know that taking on the role of therapist can be intimidating and overwhelming with all of your other responsibilities. In my experience, I know that when I show some silliness, it makes for a much more productive and fun session for not only the child, but also myself. Some of my most fun sessions are often the most engaging and productive. So give yourself permission to not stress about doing it perfectly, and just enjoy this time as much as possible. Your energy sets the tone for your child.

I would like to give several life examples of how this could play out.  I coach high school basketball.  It is easy for me to order the girls around and tell them to run and do one activity after the other. If this was always my approach, they would quickly resent me.  Instead, I constantly cheer them on and offer positive reinforcement.  I run with them and do the activities too, so they know they are not alone.  I offer incentives.  For so many free throws made, I will make them brownies.  If a player really hustles during a game I will bring them a treat.

Both of my children started taking Suzuki piano at a very young age.  It was incredibly difficult and stressful to say the least, especially for my son.  He learns differently and memorizing very complex songs was at times an impossible task.  We did fight!  Yet, I knew this was good for him in so many ways.   I could have continued to fight or I could change my ways.  I came up with incentives.  I would cheer him on and hug him.  I would have incentive charts for so many repetitions of lines played.  I would have his figurines lined up on the piano and when he played through a required line we would play make believe with the figurines.

As parents, when you are asking your children to do activities for school or therapy, don’t be afraid to cheer and get silly and dance around, and make it fun.  Be willing to do the activities with your kids or do it first and then have them do it.   During music time, clap your hands and sing and dance with your kids. If you put on an exercise video, then put on a funny workout outfit and do it with your kid.  During PT for example, if your child has to kick a ball so many times, then when he is done lift him up and spin him around or give him hugs and tickle him so that he associates having fun during therapy.  If you are ever in the Easterseals building when I am doing therapies, you are likely to hear me singing bad renditions of made up songs about what we are doing in the moment.  I even like to break out with Queen’s ”I like to ride by bicycle” when working on riding a bike.  I promise, that we as therapists, are not going to laugh at your silliness during the sessions.  You and your child will feel much better and connected to each other when the task is fun and not just something to get done.  I know that this may all seem like common sense but often we get bogged down with just getting the task done or fitting as much as we can in our allotted times that we forget what it feels like to be a kid.

I want to end with one of my favorite pictures of my son from when he was little.  He had just received this dress up outfit for his birthday.  The pure joy on his face at dressing up and being silly is priceless.  Try to embrace this kind of enthusiasm when you are working on tasks at home.  Don’t give up.  Learning to let yourself go and be silly takes time.  If you have a bad day and a session with your therapists or teachers doesn’t go as planned, forgive yourself and your child.  Every day is a new opportunity.

On GRATITUDE

A Q & A with Jennifer Lynn Robinson

To kick off the Easterseals’ virtual, free Quarterly Town Hall Series on Thursday, January 28, 2021 on Zoom, our special guest speaker Jennifer Lynn Robinson, Esq., CEO of Purposeful Networking, will help us explore how the small practice of gratitude can have big impact on your life and well-being. This engaging conversation with Ms. Robinson will provide action-items and takeaways that you can use in your daily life.

We spoke briefly with Jennifer about gratitude.

Easterseals: So, why do you think gratitude is important?

Jennifer: “Gratitude leads to greater happiness. It also helps with health benefits, building stronger relationships and dealing with adversity.”

Easterseals: Given the events of the last year, why is gratitude even more important right now?

Jennifer: “We are almost a year into this. Obviously we are dealing with large issues such as COVID and a racial reckoning in our country. But there are also the smaller but no less important things. We are mourning seeing friends & family, missing reunions, weddings, vacations–and even just the everyday normalcy of making small talk and seeing the people we interact with smile instead of behind a mask. Gratitude is even more important right now to combat those dips in our emotional and mental well-being. Additionally, by focusing on the positive we tend not to spiral and reach high anxiety levels about those things we cannot control.”

Easterseals: What is something small we can do right now to bring more gratitude into our day?

Jennifer: “Start a gratitude jar for the rest of 2021. Each day write down something you are grateful for or a highlight of your day. On New Year’s Eve read all of them! Some days it may be hard to find a silver lining but find something small. I remember one year at Thanksgiving we were going around the table asking everyone what they were thankful for and my youngest nephew said he was thankful for the color yellow. I still remember it years later.”

Want to learn more about gratitude? Register for our free, virtual Quarterly Town Hall Meeting today.

Jennifer Lynn Robinson, Esquire
Speaker| Moderator| Media Contributor |Emcee|Trainer
CEO Purposeful Networking
As seen: CBS, NBC, FOX, PHL17
Watch my TEDx talk: https://www.ted.com/talks/jennifer_lynn_robinson_from_fighting_for_breath_to_fighting_for_life?fbclid=IwAR1oR4JAnnc7znFhi-QVxzsQpSoGj5FcgF5LhmNvTzcXNpQVyWeWcbpECPA
purposefulnetworking.com
@areyounetworked

Social Emotional Learning Elf

by Lisa Wzorek, OTD, OTR/L

This week I decided to do an experiment with our Elf on the Shelf.  Our son recently turned 10 but surprisingly (and gratefully on my part, I will add!) still believes in the magic of the Elf.  I won’t lie and say that the pandemic has been easy for us at home; our son is an only child and is participating in virtual learning, so his interaction with other kids his age is very limited. 

Like most families, we have good days and bad days with all of us at home together all day, every day.  Because I have such an interest in social emotional learning and adding that to my practice as an OT, I decided to experiment with the Elf as a partner in crime regarding helping my son’s outlook.  When he wakes in the morning, he will typically search for the Elf in the house.  Along with a surprise location of the Elf, I started leaving positive notes “written” by the Elf.  The notes always praise something good that he did the day before.  For example, Friday he cleaned his schoolwork area without being asked to, so on Saturday he woke up to a note that read, “You cleaned your school area without being asked! That is being a good helper!  Your Elf.”  Another note read, “Awesome job reading yesterday!”  Now, I know I did not invent this idea of a positive note-leaving Elf; I’m sure many other parents have thought about this as well!  Sometimes it is hard for us to think of the good things we are doing, but it certainly feels good when it is pointed out to us. 

Activities like this help us to keep focused on the positive things we are doing.  And, how nice to start the day with a compliment! So, what is the verdict on the experiment? I can report, although it has only been a week, that my son starts the day with a big smile and has been doing some things around the house without me asking him.  I would say, so far, so good!

It feels good to do good

by Kristine DelMonte, Development Specialist
 
This week I am attending a virtual conference from my makeshift (and yet somehow more and more permanent) office in my dining room.
 
It is an annual conference for fundraising professionals hosted by Blackbaud, the platform Easterseals uses to manage donor data.
 
Initially, I wasn’t super excited to be glued to my computer for Zoom Keynotes and Zoom breakout sessions and Zoom networking (what even is that?). That PLUS my regular Zoom meetings seemed like maybe too much zooming.
 
Then, the people at Blackbaud scored Amy Poehler as a keynote speaker.
 
(If you don’t know Amy Poehler’s alter-ego Leslie Knope from the long-running TV show Parks & Rec, you *must* go right now and binge-watch it on Netflix. It is a definite pandemic pick-me-up.)
 
#BBCON, you had me at Amy Poehler.
 
Leslie Knope is known for her commemorative scrapbooks and detailed event binders, her dedication to her job, and her enthusiastic encouragement of absolutely everyone to be their very best. She is the ultimate development professional: nothing gets her down, she can always find a way to work around a “no,” and she has never-ending energy.
 
(I kind of love Leslie Knope.)
 
But it was the actress, not the character giving the keynote, so I wasn’t sure what to expect.
 
Turns out, Amy Poehler is her own brand of Leslie Knope, having recently started “Amy’s Smart Girls,” a nonprofit “dedicated to helping young people cultivate their authentic selves.”
 
She was amazing.


 
She talked about the physicality of doing her voice work as the character “Joy” in Disney Pixar’s Inside Out. She talked about the world right now, about finding happiness in uncertainty, and about philanthropy.
 
Two things she said stuck out to me.
 
First, she said “Do work you are proud of with your talented friends.”
 
CHECK. I am proud of the work we do at Easterseals. It’s SO hard right now because of COVID pivots and uncertainty, but I know that what we are doing makes a difference in the lives of the kids and families we serve. And boy do we have some amazing talent. From our teachers and assistants to our PT/OT/Speech and Music therapists to our Assistive Tech Department and even accounting, we have staff that work here because they love it, and it shows.
 
Then, when talking about philanthropic giving, she said “Giving is self-care.”
 
It feels good to do good.
 
Leslie Knope couldn’t have said it better herself.  
 
As we approach the season of giving, I don’t want our donors to “give till it hurts.”
 
I want to help our donors learn more about what we do, about how we serve people with disabilities, and how we continue to serve families through COVID. I want donors to get Leslie Knope-level excited about our mission. I want them to understand why their gifts are so critical (especially now), and to see the absolute joy on a child’s face when they achieve a goal… a goal made real in part because of our donors’ gifts. 
 
I want our donors to give until it feels good.
 
I’d even be willing to make a scrapbook to commemorate the occasion.

The Importance of Staying Connected in a World of Social Distancing

by Jeanine Johnson

I don’t think anyone would disagree that the past five months have been a whirlwind.  Our lives were turned upside down and sideways.  Was I anticipating that the Covid pandemic was going to last this long?  No I wasn’t.  As the days went by I found myself drifting away from family and friends.  Regular interaction with co-workers was mostly halted due to the appropriate decisions to have the staff work from home.  Those of you who know me, know that I am a pretty upbeat and positive soul.  I felt like I was starting to lose some of my shine.  Not having any of the normalcy I was used to, that I’ve taken for granted, was starting to wear on me.  Can’t do something as simple as have breakfast at the Diner before I go food shopping.  Oh, and let’s not talk about the whole process of food shopping.  I miss the kids.  I so miss the kids.  They are the best part of my work day. 

I realized I needed to connect.  I needed to bring some of the sunshine and joy back into my life.  I needed some Mung therapy.  Just in case you have never read any of my blogs, Mung is a student that graduated from Easterseals a couple of years ago.  I bonded with him and his family while he was a student here and we have kept in touch.  Usually meeting up a couple times a year for an outing.  So grateful to his family for sharing him with me.  For his summer break I had planned to meet up with him, take the ferry from Penn’s Landing, go to the Camden Aquarium and feed him to the sharks.  Ok, I wasn’t going to feed him to the sharks.  Unfortunately, circumstances squashed my plans.  I thought about it.  If I’m feeling disconnected, how must it feel for the kids.  It was time for me to get selfish.  Time to bring a little unexpected sunshine into his life.  Selfish because this would probably bring me more joy than he would get out of it.  I have a little inexpensive pick-me-up I use on occasion.  It is a Cookie Card.  Its $6.00, shipping included.  You get to send one cookie in a decorated box with your message on the label.  I got so excited at the prospect of bringing joy that it helped bring that spark back.  I couldn’t wait for it to be delivered.

I didn’t have to wait long before I got a text with a picture and two videos of him thanking me aka “Wonder Woman” and Autumn (my daughter) aka “Bat Man”.  He said that he loves and misses us.  It was so nice to hear.  I realize that you can start to lose yourself if you become too disconnected from the world and each other.  We have to get used to a “new normal” and have to rebalance how that makes us feel, find the positives and take joy in the little things.  It’s been real trying, but we’ll be stronger because of it.

Get out of your chair part 2

In this series, Suzanne Gladstone, MS OTR/L, provides a more helpful ways to get out of your chair! In the first video she explains how to make a homemade card using simple abstract art with markers, crayons and paper.

The second video goes over how skills presented in the previous series will be incorporated into this fun art activity.

Measuring Accomplishments

by Susan Lowenstein, MSPT

Booker T. Washington, American author, orator, educator, and advisor to many presidents once said, “You measure the size of the accomplishment by the obstacles you have to overcome to reach your goals.” 

So, that being said…let me tell you about a little boy I know named Miles. He is a 6 year old that is currently a student of mine at Easterseals of Southeastern PA, Bucks County Division. I have had the pleasure of watching him fight to overcome obstacles for the past 9 months, but he has been fighting an uphill battle for all 72 months of his young life.

Miles attending virtual therapy!

OBSTACLE #1: Born 8 weeks early.

OBSTACLE #2: Shared birthday with his twin brother so he was already small for his gestational size.

OBSTACLE #3: Has a mutation on his COL2A1 gene that causes several types of skeletal dysplasia, and his is closest to what is called hypochondrogenesis.

OBSTACLES #4,5,6,7 and 8: Has spinal instability, ongoing joint issues, hearing loss, significant vision issues, and a floppy airway.  

OBSTACLE#9: Intubated at birth

OBSTACLE#10: Received a tracheostomy at 3 months of age

OBSTACLE#11: Transferred to the ICU at Nemours DuPont (an hour away from home!)

So… why am I sharing all of this with you? Well, this is just the beginning of Miles’s story. He may have encountered countless obstacles… but he continues face each one head on and works to overcome them.

So…let’s look at all that Miles has ACCOMPLISHED so far in his 6 years of life.  

ACCOMPLISHMENT #1: Became strong enough to be supported by a home ventilator and home nursing support to go home, just 6 days shy of his and twin brother George’s 1st birthday! 

ACCOMPLISHMENT #2: Learned to taste foods by mouth (even though he needed a g-tube for nutrition) during the first year of his life

ACCOMPLISHMENT #3: Used his hands to gesture and request for food like yogurt and applesauce during his first year of life

ACCOMPLISHMENT #4: Re-learned how to accept some food orally again after cleft palate split at 18 months of age.  

ACCOMPLISHMENT #5:  Started sprinting (practicing time off the ventilator) when he was around 3 years old. Now he is at the point where he can spend nearly all of his waking hours without the ventilator.

ACCOMPLISHMENT #6: Sat upright in a highly supportive activity chair at 2.5 years old (despite his large head and short arms and trunk)

ACCOMPLISHMENT #7: Sat upright on the floor without any back support while playing with toys and watching the classroom smart board or TV at home at 5 years old

ACCOMPLISHMENT #8: Transitions from lying down into sitting up all by himself at almost 6 years old

And…just in the time that it has taken me to put this blog together…Miles has accomplished yet another 2 more feats!!! He can now pull himself up into a supported standing position at his walker all by himself (that’s #9), and has gotten strong enough to crawl over to a large couch cushion and pull all of his body weight up onto it (that’s #10).

Every accomplishment that Miles has achieved is testimony to his resilience, his amazing family and his team of health care and educational professionals. Together, we continue to imagine what he CAN do, not what he CANNOT do.

When people ask me what I do for a living, I tell them that I am a pediatric PT that works with children with complex physical and medical needs. Frequently, I am asked, “ Doesn’t your work make you sad?”  But to the contrary, I find it wondrous to work with children like Miles who are able to overcome obstacles and accomplish so much more than some people may have ever thought would be possible.

Miles, thank you for being such a fighter. We at Easterseals are behind you 100%, and we will continue to watch you hurdle through more obstacles and accomplish so much more accomplish in your future!

Miles proudly displays a certificate of accomplishment