Tag Archives: Easterseals

Extended Family Ties

by Jeanine Johnson

Over the holidays I gave a lot of thought to family. The definition of family in many legal contexts denotes “individuals related by blood, marriage, or adoption” but there’s other definitions that are broader, encompassing groups of individuals not related by these things. At Easterseals we embody the broader meaning. I am entering my 4th year of employment with Easterseals and the past 3 years have been wonderful. I have had many challenges which have been outweighed by unexpected and welcomed joys. I truly feel that my family has been extended by the relationships I have developed with some of the families here at Easterseals.

One of the things that gave my holiday season a great start was hearing from the family of one of my favorite students that no longer attend Easterseals, Maximo! I received updated pictures of him and his family, which show how much he has grown, and information on all his progress over the last year. They could be crowned one of the cutest families ever and I feel blessed that they have continued to let me, in some small way, be a part of his life!

Over the holiday break I met up with one of my other favorite graduates, Mung. My daughter Autumn and I had the pleasure of spending time with him at the Academy of Natural Sciences. His mother doesn’t mind that we steal him away for a few hours. It is so nice to see that his indomitable spirit is still fully intact, that he is adjusting to the change in schools and making progress both physically and academically. I enjoy outings with Mung because he has a sense of humor and sarcasm that is way beyond his years. He is one of the brightest and most intelligent children I have ever had the pleasure of knowing. We always have a good time and he is always saddened, with tears flowing, by our departure. I assured him that as long as he will have us, we will be around!

I know I’ve mentioned this before, but I love, love, love the fact that at Easterseals, regardless of your position, you have the option to be as involved with the children as you choose (well, as much as your workflow allows). I am not part of the classroom staff but I was gifted with the opportunity to accompany the Owls class on their annual trip to the light shows at both the Comcast Center and Macy’s and then the Dickens House exhibit. I was paired up with another cutie, Naji, who has fast become one of my favorites. Wait, should I be saying that? Oh, well. In actuality, I have a lot of cuties that I adore who visit me every day! Every year brings opportunities for new connections. I have daily reminders of why what I do matters!

I have come to understand how my mother, a mother of 8, still had room in her heart and life for the ton of other children that referred to her as mom. Families can be comprised of the truly invaluable relationships one builds throughout life, and love truly has no limits.

More Customized Chairs from the “Cardboard Fairy”

by Sandy Masayko

These beautiful customized chairs and slant boards not only meet children’s seating needs, they reflect the children’s interests and are very attractive. All of this adaptive design work has been done by our talented and valuable Cardboard Fairy, Dorothy Hess, who meets with the children’s therapists to determine best seating. Thank you, Dorothy, for continuing to work with the children who are served by Easterseals!

Cardboard Fairy Is Still at Work!

by Sandy Masayko

The Cardboard Fairy, also known as Dorothy Hess, is still spreading her magic around to Easterseals children. Her latest creations include custom-made chairs, trays, benches and steps. Dorothy is not only a talented designer, she is also an artist who decorates her creations with pictures of items that have special meaning to the child or family. She has fabricated items for children in our schools as well as young children in the community. We are grateful for Dorothy’s work and dedication in creating beautiful and functional equipment.

It Doesn’t Get Better Than This

by Jeanine Johnson

I know, I know, I keep talking about how amazing Easterseals is. But it IS truly amazing. Despite working in an administrative capacity, there are ample opportunities to interact with the children. There is a welcoming culture here at Easterseals, and I am one who has chosen to take advantage of this culture. I have made interacting with the children an integral part of my day, taking breaks from the monotony of office work and visiting classrooms.

Oh, the payout is grand!! Not only do I get to know the children, but they get to know me. As a result, I get daily visits from several children before they board the buses to go home. I’ve been told those children are not happy when I’m not here to receive them. BIG SMILE!! I even have the honor of being included as one of the “people options” on one of the student’s communication device. When I hear “Ms. Jeanine” coming from the hallway, I know Vanessa is coming to pay me a visit. How cool is that!

Even though I am not a part of the education team, I’m still a part of the children’s learning experiences. Whether I’m coaxing a friend to use her words, identifying colors, blowing bubbles, sharing or practicing manners, we are all learning. I think in life we are all both Teachers and Students. I know I have learned a lot from the kids. Most importantly remembering to find joy in the little things, and appreciating the significance of determination, trust, and unconditional love. Whenever I need a “Pick-Me-Up” or want to “Fall in Love” all over again, I visit with the kids!

Lifetime Imprints

by Jeanine Johnson

The other day I was sitting and reflecting fondly on the last year. I made a lot of meaningful connections with the children here at Easterseals. As I have spoken of before, I was both sad to see some leave, but excited for the growth and progress that enabled them to move forward, on to the next adventure in their lives. I was comforted in the thought that maybe, just maybe, I’d be able to hold on to some of these connections, at least a little longer. I’m sitting here smiling because I have. Don’t know how long it will last, but I am holding on to and enjoying every opportunity that presents itself.

In August I attended a 5th Birthday party for Maximo. He’s a former student who left Easterseals early because his family relocated. During his time here he managed to capture everyone’s heart. We were all disappointed that our time with him was cut short. I was overjoyed that I was invited to share in his birthday celebration. It was nice being able to see him and, to once again, experience that magical smile. His mother sends me pictures periodically, which always brightens my day immensely.

In December I met up with one of my favorite graduates, Mung. My daughter, Autumn, and I treated Mung and his mother to lunch in Center City, Philadelphia. We had an opportunity to catch up on all that has been going on with him and his transitioning to a new school. He has always been somewhat of a character having “beyond his years” humor and sarcasm. I was delighted to see that hadn’t changed.

What’s been very evident to me is how much that Easterseals has meant to these families. I am so glad that their faith in entrusting us with the care of their children was well placed. The impact our programs have for these children will remain with them for years to come. The impact the children have had on me will last my lifetime.

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lunch with Mung

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Maximo’s birthday

Music and Memories

by Sabrina Stafford

When I received the news that I would be interning at Easterseals back in December of 2015, I was ecstatic. Being the oldest sibling of two children with special needs, I am used to most special education programs being familiar with my family; but this was different. Easterseals had been a part of not only my brother and sister’s lives but also mine. I attended the Sibshop program that was available in the evenings to siblings of children who attended Easterseals. This program was very important to me as a little girl (and I’m not just saying that because they had free pizza).

Sibshop taught me that although being a sibling is difficult, it is also incredibly rewarding. My siblings are a blessing. Without them, I wouldn’t have been able to easily learn values such as patience, empathy and hope. When I walked into the doors of the Delaware County Division of Easterseals after accepting the position as the Music Therapist, I felt like I was walking into Easterseals as a little girl back in the early 2000’s.

My brother, Sammy, graduated from Easterseals in 2000. He is currently 22 years old and a graduate from Elwyn’s Davidson School. Sammy once was a student in the APS classroom. Sammy received in-home services such as physical, occupational, and speech therapy. In fact, Ms. Paula, Sammy’s previous PT still works at Easterseals today. What a surprise it was for me to recognize a familiar face on my first week as an intern! Sammy is healthy and strong and enjoys his days socializing at home with family and his nurses.

My sister, Sophia, graduated from Easterseals in 2006. She is now 17 years old and attends a life-skills class at Penncrest High School. Sophia was one of the first children to attend the Friendship academy at the Delaware County Division. Sophia continues to enjoy school, especially socializing with peers her age. She attends all of her high school dances and is also a member of her student council and honors society. Sophia also works at The Media Library as part of her life-skills curriculum.

I am a proud sibling of both Sammy and Sophia. Of course my special family has come with challenges, but those challenges are heavily outweighed by the benefits. Easterseals has been a small-knit community for me and my family, and continues to be a supportive environment for me as a newly professional Music Therapist.

Although Sammy and Sophia have both graduated from Easterseals, they bring the spirit and warmth of the Easterseals community with them. They will continue to hold Easterseals in their hearts, just as I continue to do every day. It has been such a rewarding experience for me working at Easterseals; I feel like I was born to have this job. I am so very thankful for the life experiences that prepared me for my endeavors at Easterseals. Because of this, I wake up every day with a smile knowing that without my siblings, and without Easterseals, I wouldn’t be the person I am today.

The Odyssey of Giving Back!

by Kirstyn O’Donnell

When 3:30 p.m. hits and my shift at Easterseals is done for the day, home is the last thing on my mind. Almost every other day, I am on my way to an Odyssey of the Mind meeting, that myself and my friend coach. What is Odyssey of the Mind? In short, it’s a sport for your mind. It’s a team everyone can join from kindergarten to twelfth grade to problem solve in a creative way. They use those problem solving skills in a skit that they perform later in the year at regional competition.

On Monday, March 19th, the Pennsbury High School Odyssey of the Mind students visted Easterseals with three boxes of Spring Meal Packages. The Students- Rowan Leventhal, Sarah Uhlman, Danielle Gershman, Becca Uhlman, and Noah Petroski, gathered food for over two weeks with the full intention of giving their donations to some Easterseals families. When the students arrived at the school, they sorted a big box that was overflowing with food into thee separate boxes. Then they were able to tour the school. The air was filled with question after question as they learned about what the staff at Easterseals provides to the children in our community. They were able to see what the school has to offer and were in awe to see the classrooms, the gym and the sensory room.

The students were also able to see some of the equipment that the children use daily, such as standers and gait trainers. They learned how and why these items are used. What they loved most about Easterseals was how the staff finds creative ways to help the children progress in their daily lives. The students later told me that Easterseals was something that they have never experienced before. In that hour and a half of time, they learned something that was very important. They learned that no matter who you are, or how old you may be, giving back to your community is always important. One thing is for sure, Easterseals impacted their lives and they are very excited to return one day in the future!

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students working on their donations.