Tag Archives: Easterseals

It feels good to do good

by Kristine DelMonte, Development Specialist
 
This week I am attending a virtual conference from my makeshift (and yet somehow more and more permanent) office in my dining room.
 
It is an annual conference for fundraising professionals hosted by Blackbaud, the platform Easterseals uses to manage donor data.
 
Initially, I wasn’t super excited to be glued to my computer for Zoom Keynotes and Zoom breakout sessions and Zoom networking (what even is that?). That PLUS my regular Zoom meetings seemed like maybe too much zooming.
 
Then, the people at Blackbaud scored Amy Poehler as a keynote speaker.
 
(If you don’t know Amy Poehler’s alter-ego Leslie Knope from the long-running TV show Parks & Rec, you *must* go right now and binge-watch it on Netflix. It is a definite pandemic pick-me-up.)
 
#BBCON, you had me at Amy Poehler.
 
Leslie Knope is known for her commemorative scrapbooks and detailed event binders, her dedication to her job, and her enthusiastic encouragement of absolutely everyone to be their very best. She is the ultimate development professional: nothing gets her down, she can always find a way to work around a “no,” and she has never-ending energy.
 
(I kind of love Leslie Knope.)
 
But it was the actress, not the character giving the keynote, so I wasn’t sure what to expect.
 
Turns out, Amy Poehler is her own brand of Leslie Knope, having recently started “Amy’s Smart Girls,” a nonprofit “dedicated to helping young people cultivate their authentic selves.”
 
She was amazing.


 
She talked about the physicality of doing her voice work as the character “Joy” in Disney Pixar’s Inside Out. She talked about the world right now, about finding happiness in uncertainty, and about philanthropy.
 
Two things she said stuck out to me.
 
First, she said “Do work you are proud of with your talented friends.”
 
CHECK. I am proud of the work we do at Easterseals. It’s SO hard right now because of COVID pivots and uncertainty, but I know that what we are doing makes a difference in the lives of the kids and families we serve. And boy do we have some amazing talent. From our teachers and assistants to our PT/OT/Speech and Music therapists to our Assistive Tech Department and even accounting, we have staff that work here because they love it, and it shows.
 
Then, when talking about philanthropic giving, she said “Giving is self-care.”
 
It feels good to do good.
 
Leslie Knope couldn’t have said it better herself.  
 
As we approach the season of giving, I don’t want our donors to “give till it hurts.”
 
I want to help our donors learn more about what we do, about how we serve people with disabilities, and how we continue to serve families through COVID. I want donors to get Leslie Knope-level excited about our mission. I want them to understand why their gifts are so critical (especially now), and to see the absolute joy on a child’s face when they achieve a goal… a goal made real in part because of our donors’ gifts. 
 
I want our donors to give until it feels good.
 
I’d even be willing to make a scrapbook to commemorate the occasion.

The Importance of Staying Connected in a World of Social Distancing

by Jeanine Johnson

I don’t think anyone would disagree that the past five months have been a whirlwind.  Our lives were turned upside down and sideways.  Was I anticipating that the Covid pandemic was going to last this long?  No I wasn’t.  As the days went by I found myself drifting away from family and friends.  Regular interaction with co-workers was mostly halted due to the appropriate decisions to have the staff work from home.  Those of you who know me, know that I am a pretty upbeat and positive soul.  I felt like I was starting to lose some of my shine.  Not having any of the normalcy I was used to, that I’ve taken for granted, was starting to wear on me.  Can’t do something as simple as have breakfast at the Diner before I go food shopping.  Oh, and let’s not talk about the whole process of food shopping.  I miss the kids.  I so miss the kids.  They are the best part of my work day. 

I realized I needed to connect.  I needed to bring some of the sunshine and joy back into my life.  I needed some Mung therapy.  Just in case you have never read any of my blogs, Mung is a student that graduated from Easterseals a couple of years ago.  I bonded with him and his family while he was a student here and we have kept in touch.  Usually meeting up a couple times a year for an outing.  So grateful to his family for sharing him with me.  For his summer break I had planned to meet up with him, take the ferry from Penn’s Landing, go to the Camden Aquarium and feed him to the sharks.  Ok, I wasn’t going to feed him to the sharks.  Unfortunately, circumstances squashed my plans.  I thought about it.  If I’m feeling disconnected, how must it feel for the kids.  It was time for me to get selfish.  Time to bring a little unexpected sunshine into his life.  Selfish because this would probably bring me more joy than he would get out of it.  I have a little inexpensive pick-me-up I use on occasion.  It is a Cookie Card.  Its $6.00, shipping included.  You get to send one cookie in a decorated box with your message on the label.  I got so excited at the prospect of bringing joy that it helped bring that spark back.  I couldn’t wait for it to be delivered.

I didn’t have to wait long before I got a text with a picture and two videos of him thanking me aka “Wonder Woman” and Autumn (my daughter) aka “Bat Man”.  He said that he loves and misses us.  It was so nice to hear.  I realize that you can start to lose yourself if you become too disconnected from the world and each other.  We have to get used to a “new normal” and have to rebalance how that makes us feel, find the positives and take joy in the little things.  It’s been real trying, but we’ll be stronger because of it.

Get out of your chair part 2

In this series, Suzanne Gladstone, MS OTR/L, provides a more helpful ways to get out of your chair! In the first video she explains how to make a homemade card using simple abstract art with markers, crayons and paper.

The second video goes over how skills presented in the previous series will be incorporated into this fun art activity.

Measuring Accomplishments

by Susan Lowenstein, MSPT

Booker T. Washington, American author, orator, educator, and advisor to many presidents once said, “You measure the size of the accomplishment by the obstacles you have to overcome to reach your goals.” 

So, that being said…let me tell you about a little boy I know named Miles. He is a 6 year old that is currently a student of mine at Easterseals of Southeastern PA, Bucks County Division. I have had the pleasure of watching him fight to overcome obstacles for the past 9 months, but he has been fighting an uphill battle for all 72 months of his young life.

Miles attending virtual therapy!

OBSTACLE #1: Born 8 weeks early.

OBSTACLE #2: Shared birthday with his twin brother so he was already small for his gestational size.

OBSTACLE #3: Has a mutation on his COL2A1 gene that causes several types of skeletal dysplasia, and his is closest to what is called hypochondrogenesis.

OBSTACLES #4,5,6,7 and 8: Has spinal instability, ongoing joint issues, hearing loss, significant vision issues, and a floppy airway.  

OBSTACLE#9: Intubated at birth

OBSTACLE#10: Received a tracheostomy at 3 months of age

OBSTACLE#11: Transferred to the ICU at Nemours DuPont (an hour away from home!)

So… why am I sharing all of this with you? Well, this is just the beginning of Miles’s story. He may have encountered countless obstacles… but he continues face each one head on and works to overcome them.

So…let’s look at all that Miles has ACCOMPLISHED so far in his 6 years of life.  

ACCOMPLISHMENT #1: Became strong enough to be supported by a home ventilator and home nursing support to go home, just 6 days shy of his and twin brother George’s 1st birthday! 

ACCOMPLISHMENT #2: Learned to taste foods by mouth (even though he needed a g-tube for nutrition) during the first year of his life

ACCOMPLISHMENT #3: Used his hands to gesture and request for food like yogurt and applesauce during his first year of life

ACCOMPLISHMENT #4: Re-learned how to accept some food orally again after cleft palate split at 18 months of age.  

ACCOMPLISHMENT #5:  Started sprinting (practicing time off the ventilator) when he was around 3 years old. Now he is at the point where he can spend nearly all of his waking hours without the ventilator.

ACCOMPLISHMENT #6: Sat upright in a highly supportive activity chair at 2.5 years old (despite his large head and short arms and trunk)

ACCOMPLISHMENT #7: Sat upright on the floor without any back support while playing with toys and watching the classroom smart board or TV at home at 5 years old

ACCOMPLISHMENT #8: Transitions from lying down into sitting up all by himself at almost 6 years old

And…just in the time that it has taken me to put this blog together…Miles has accomplished yet another 2 more feats!!! He can now pull himself up into a supported standing position at his walker all by himself (that’s #9), and has gotten strong enough to crawl over to a large couch cushion and pull all of his body weight up onto it (that’s #10).

Every accomplishment that Miles has achieved is testimony to his resilience, his amazing family and his team of health care and educational professionals. Together, we continue to imagine what he CAN do, not what he CANNOT do.

When people ask me what I do for a living, I tell them that I am a pediatric PT that works with children with complex physical and medical needs. Frequently, I am asked, “ Doesn’t your work make you sad?”  But to the contrary, I find it wondrous to work with children like Miles who are able to overcome obstacles and accomplish so much more than some people may have ever thought would be possible.

Miles, thank you for being such a fighter. We at Easterseals are behind you 100%, and we will continue to watch you hurdle through more obstacles and accomplish so much more accomplish in your future!

Miles proudly displays a certificate of accomplishment

Communication Board for Older Students/Adults

The Assistive Technology team has created an older student/adult language board to use during this pandemic period of time. They have also created an alphabet board set in Qwerty that can be printed separately or on the back.

These visual supports can be useful in trying to facilitate communication. He hope you find this helpful.

Visual Support for Communication

 

Sleep Strategies and Toilet Training Webinars

Our Behavior Therapy Department is pleased to present training webinars for all who are interested. There are two webinars available. See below for description and registration information.

Sleep Strategies:

Learn about sensory processing and self-regulation and how it relates to sleep, as well as behavioral interventions for common sleep difficulties such as delayed sleep onset and night awakenings. Presented by Daniellle Franchini-Muir (BCBA), Adrienne Krysuik (OT), and Nequetta Alford (LBS).

 

You are invited to a Zoom webinar.
When: Jun 10, 2020 03:00 PM Eastern Time (US and Canada)
Topic: Sleep Strategies

Toilet Training:

Learn about toileting/potty training strategies no matter where your child is developmentally! We will discuss where to start as well as readiness and motor skills. Presented by Daniellle Franchini-Muir (BCBA),Isabel Kats (LSW), Rachel Rosenblum (OT), and Braelyn Beaver (BCBA).

You are invited to a Zoom webinar.
When: Jun 9, 2020 03:30 PM Eastern Time (US and Canada)
Topic: Toilet Training

Mindfulness Activities for All!

by Lisa S. Wzorek, MA, OTR/L

I wanted to share a few activities that can be done to help our children (and ourselves) practice mindfulness, based on last week’s post.  One activity is a tried and true one in my family, and the other is a new one that we tried over this past week.

One thing that I loved doing as a shy and introverted kid to be calm and away from my loud family was building a fort.  It was usually a small, dark space but it was my own space and a great getaway.  Lots of people and classrooms these days use tents as a “calm corner” for our children to have a place to be calm.  When my son was younger, I discovered a fun and easy way to make a tent without the need to purchase another item:  simply putting a sheet over our table!  Then we would pile blankets, pillows and stuffed animals inside.  Calm and relaxing!  The one we made in the picture below is using a lighter sheet.  You can make use a dark sheet or blanket to make the space darker.  You can also put your child’s favorite toys, books, light up toys and wands, and flashlights.

Screen Shot 2020-05-28 at 11.18.51 AM

Another activity is making a Mindfulness Jar.  You can google this and find different names for it, such as Calming Jar, Meditation Jar, Time-Out Jar, etc.  I found two simple recipes that work really well and, if you are a crafter, you may already have all of the ingredients at home.

Screen Shot 2020-05-28 at 11.19.13 AM

 

For the calming jar, you can use an empty plastic bottle or a glass jar.  If you have a child that tends to throw objects, the plastic bottle may be your best option.  You can use white glue if that is what you have, too.  This activity is, in itself, very calming!  Fill your container about 1/3 of the way with glue, add about 2 tablespoons of glitter (or however much you want!), then fill the rest of the way with warm water from the tap.  At this time, you can add 1-2 drops of food coloring into the mix if you like.  Cap it and shake it up until all of the ingredients are mixed together.  Here are some of our finished products:

You may be wondering…what do you do with the jars and how do they work?  Sit with the jars when you need a calm moment and give them a good shake.  Set the jar down and watch the glitter swirl.  Focus on the movement of the glitter and take some nice, deep breaths.  Focusing and breathing helps to calm our brains and our bodies.  Do this until the glitter settles down; then do it again, if you like!  When you do this with your child, describe what is happening in the jar.  This will help them to focus just on the movement of the glitter and to be mindful.

The act of “doing” with both of these activities has both strengthening and healing components.  We’ve already pointed out the aspect of mindfulness and calming.  But making our tent and our jars also taps into problem-solving, motor planning, visual motor skills, visual perceptual skills and fine motor skills.   Maybe even some math if you are able to work on measuring with your child.  If your child cannot participate in building the tent or making the jars, talk out the steps you are doing and bring them into the activity in this way.  Talk about the colors you are using, the textures (sticky, wet, warm, messy) and help them to experience it, too.  Maybe you can try different positioning with your child inside the tent to read books together and play flashlight tag.  Hope you enjoy these mindful activities!

Mini Music Session

Miss Amanda has another mini music session to share! And since May is Mental Health Awareness Month, we are especially loving “It’s Okay Not to be Okay”

– Hello (with scavenger hunt)

 

– Snail and Mouse:

 

– 5 Green and Speckled Frogs:

 

– Play the Drum:

 

– It’s Okay Not to Be Okay:

 

– Ili Ili Tulog Anay:

– Goodbye (with scavenger hunt):