Category Archives: child stories

Sometimes You Just Gotta Have Some Fun

by Maggie Cusak

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The winter months in a school can be long and hard. Children cannot go outside, teachers feel cooped up and administrators feel the stress of keeping everyone happy and safe during those long cold months. At the EI Center, the GROBO committee, a group of coworkers has been committed to Getting Rid of BurnOut and reminding people that work can be fun! The group has sponsored activities during the workday, and social gatherings outside of work. During the month of March, the committee sponsored a door-decorating contest for all offices and classrooms.

Staff selected a children’s book or popular author and got to work on their creations. The doors, to be judged by three impartial coworkers, were designed to not only be pretty, but also interactive and fun. The doors made familiar stories come alive with switch-activated lights, manipulative features and voice output devices. Each door incorporated children’s artwork as well as staff creativity and imagination. Each door reflected a small piece of the classroom’s spirit or office’s expertise. For example, the Occupational Therapists created a door featuring Pete the Cat and His Four Groovy Buttons that incorporated the ability for students to practice buttoning his sweater, and tying his shoes. One of the classrooms featured several textured dinosaurs from a beloved Barefoot Book called The Dinosaur Rap, as well as a voice output device that played a repeated phrase in the book.

Throughout the first week of March, students and staff have enjoyed walking around the school and operating the buttons, and moving the pieces of each door. It’ll be a test to see which door survives the longest.

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Extended Family Ties

by Jeanine Johnson

Over the holidays I gave a lot of thought to family. The definition of family in many legal contexts denotes “individuals related by blood, marriage, or adoption” but there’s other definitions that are broader, encompassing groups of individuals not related by these things. At Easterseals we embody the broader meaning. I am entering my 4th year of employment with Easterseals and the past 3 years have been wonderful. I have had many challenges which have been outweighed by unexpected and welcomed joys. I truly feel that my family has been extended by the relationships I have developed with some of the families here at Easterseals.

One of the things that gave my holiday season a great start was hearing from the family of one of my favorite students that no longer attend Easterseals, Maximo! I received updated pictures of him and his family, which show how much he has grown, and information on all his progress over the last year. They could be crowned one of the cutest families ever and I feel blessed that they have continued to let me, in some small way, be a part of his life!

Over the holiday break I met up with one of my other favorite graduates, Mung. My daughter Autumn and I had the pleasure of spending time with him at the Academy of Natural Sciences. His mother doesn’t mind that we steal him away for a few hours. It is so nice to see that his indomitable spirit is still fully intact, that he is adjusting to the change in schools and making progress both physically and academically. I enjoy outings with Mung because he has a sense of humor and sarcasm that is way beyond his years. He is one of the brightest and most intelligent children I have ever had the pleasure of knowing. We always have a good time and he is always saddened, with tears flowing, by our departure. I assured him that as long as he will have us, we will be around!

I know I’ve mentioned this before, but I love, love, love the fact that at Easterseals, regardless of your position, you have the option to be as involved with the children as you choose (well, as much as your workflow allows). I am not part of the classroom staff but I was gifted with the opportunity to accompany the Owls class on their annual trip to the light shows at both the Comcast Center and Macy’s and then the Dickens House exhibit. I was paired up with another cutie, Naji, who has fast become one of my favorites. Wait, should I be saying that? Oh, well. In actuality, I have a lot of cuties that I adore who visit me every day! Every year brings opportunities for new connections. I have daily reminders of why what I do matters!

I have come to understand how my mother, a mother of 8, still had room in her heart and life for the ton of other children that referred to her as mom. Families can be comprised of the truly invaluable relationships one builds throughout life, and love truly has no limits.

Lifetime Imprints

by Jeanine Johnson

The other day I was sitting and reflecting fondly on the last year. I made a lot of meaningful connections with the children here at Easterseals. As I have spoken of before, I was both sad to see some leave, but excited for the growth and progress that enabled them to move forward, on to the next adventure in their lives. I was comforted in the thought that maybe, just maybe, I’d be able to hold on to some of these connections, at least a little longer. I’m sitting here smiling because I have. Don’t know how long it will last, but I am holding on to and enjoying every opportunity that presents itself.

In August I attended a 5th Birthday party for Maximo. He’s a former student who left Easterseals early because his family relocated. During his time here he managed to capture everyone’s heart. We were all disappointed that our time with him was cut short. I was overjoyed that I was invited to share in his birthday celebration. It was nice being able to see him and, to once again, experience that magical smile. His mother sends me pictures periodically, which always brightens my day immensely.

In December I met up with one of my favorite graduates, Mung. My daughter, Autumn, and I treated Mung and his mother to lunch in Center City, Philadelphia. We had an opportunity to catch up on all that has been going on with him and his transitioning to a new school. He has always been somewhat of a character having “beyond his years” humor and sarcasm. I was delighted to see that hadn’t changed.

What’s been very evident to me is how much that Easterseals has meant to these families. I am so glad that their faith in entrusting us with the care of their children was well placed. The impact our programs have for these children will remain with them for years to come. The impact the children have had on me will last my lifetime.

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lunch with Mung

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Maximo’s birthday

Music and Memories

by Sabrina Stafford

When I received the news that I would be interning at Easterseals back in December of 2015, I was ecstatic. Being the oldest sibling of two children with special needs, I am used to most special education programs being familiar with my family; but this was different. Easterseals had been a part of not only my brother and sister’s lives but also mine. I attended the Sibshop program that was available in the evenings to siblings of children who attended Easterseals. This program was very important to me as a little girl (and I’m not just saying that because they had free pizza).

Sibshop taught me that although being a sibling is difficult, it is also incredibly rewarding. My siblings are a blessing. Without them, I wouldn’t have been able to easily learn values such as patience, empathy and hope. When I walked into the doors of the Delaware County Division of Easterseals after accepting the position as the Music Therapist, I felt like I was walking into Easterseals as a little girl back in the early 2000’s.

My brother, Sammy, graduated from Easterseals in 2000. He is currently 22 years old and a graduate from Elwyn’s Davidson School. Sammy once was a student in the APS classroom. Sammy received in-home services such as physical, occupational, and speech therapy. In fact, Ms. Paula, Sammy’s previous PT still works at Easterseals today. What a surprise it was for me to recognize a familiar face on my first week as an intern! Sammy is healthy and strong and enjoys his days socializing at home with family and his nurses.

My sister, Sophia, graduated from Easterseals in 2006. She is now 17 years old and attends a life-skills class at Penncrest High School. Sophia was one of the first children to attend the Friendship academy at the Delaware County Division. Sophia continues to enjoy school, especially socializing with peers her age. She attends all of her high school dances and is also a member of her student council and honors society. Sophia also works at The Media Library as part of her life-skills curriculum.

I am a proud sibling of both Sammy and Sophia. Of course my special family has come with challenges, but those challenges are heavily outweighed by the benefits. Easterseals has been a small-knit community for me and my family, and continues to be a supportive environment for me as a newly professional Music Therapist.

Although Sammy and Sophia have both graduated from Easterseals, they bring the spirit and warmth of the Easterseals community with them. They will continue to hold Easterseals in their hearts, just as I continue to do every day. It has been such a rewarding experience for me working at Easterseals; I feel like I was born to have this job. I am so very thankful for the life experiences that prepared me for my endeavors at Easterseals. Because of this, I wake up every day with a smile knowing that without my siblings, and without Easterseals, I wouldn’t be the person I am today.

Looking forward to Walk With Me

by Eva Delmonte

Eva is 12-years-old and was a volunteer at last year’s Walk. Recently, she came in to volunteer on her day off from school to help get ready for this year’s event. While she was here, she had the opportunity to meet Mung, one of the Honorary Ambassadors. She also took a little time to write some of her memories from last year.

I absolutely enjoyed the Easter Seals event. It was very fun to be at the zoo. They even provided water, other refreshments and hotdogs! The best thing was walking around the zoo and seeing the animals, especially the giraffes! After the event I got to explore even more because you get all all day pass if you go to the Walk. I loved this event and if you come, I know that you will too!

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Eva and Mung

To register for Walk With Me, visit http://www.walkwithme.org/philadelphia

Wheelchairs and Accommodations at Northcott

by Sandy Masayko

This is the fourth post in a series of post from Sandy’s visit to Australia

Exploring the farm is part of the fun of living there. But for an 11-year-old boy who was being jostled about in his chair because the standard wheels on his current chair are not designed for uneven terrain, exploration was not so much fun and not really safe. Adapting the power wheelchair so that his young client can drive all around the dirt roads on his family’s farm was the focus of Northcott OT Santheesh Thiruchelvam’s day on Feb. 15. We accompanied Santheesh on a one-hour drive into the country to meet with his young client and the boy’s family.

Santheesh had arranged for a vendor for an Australian wheelchair company, Glide, to bring wheelchairs with wider tires out to the farm for some test drives. As soon as he was in the new chair, the boy took off down a dirt road, turned around and returned with a grin on his face. He really liked the smoother ride on the larger tires. Next challenge was driving into his parent’s van. This test revealed that the tires were too large for van entry. Next trial was with a chair fitted with slightly more narrow tires. The second trial proved that with the narrow tires chair could go up the ramp.

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OT Santheesh Thiruchelvam supervises his client’s trial with a power wheel chair adapted with wide tires for uneven terrain.

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Although the tires on this wheelchair proved to be too wide for the child to drive into his parents’ van, when he tried another chair with more narrow tires the child was successful. His OT, father and Cristen Reat of Easterseals Houston look on.

After returning to Northcott, we met with Tara Ozturk who is an Accommodations Services Manager. She oversees the operations of several community living arrangements where folks can live in their own apartments, in shared or independent housing. Support is given as needed from the workers on staff according to the plan developed with the customers. We visited an accessible garden apartment complex where 12 people live in 8 apartments with some common space for barbecues, gardens and meetings. Residents proudly showed us their apartments. Northcott has a network of housing and supported independent living services throughout the area, giving people with disabilities choices in housing.

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Tara Ozturk, Cristen Reat, a Support Worker and Sandy Masayko chatted in the garden courtyard of a shared housing apartment complex.

Read the first post here, the second here and the third here.

Cheltenham High School: Twelve Years of Holiday Giving

by Adrienne Young

When my daughter Amber was a junior at Cheltenham High School she was also on their Charities Committee. In 2004, they were looking for a new organization purchase holiday gifts for, annually. Amber immediately said, “What about Easter Seals?!” Since then, the tradition has continued. This is the twelfth year that each homeroom at Cheltenham is given names of several preschoolers in the Bucks Division, and based on what their favorite toy items are, has made gift purchases with their own money.

The Charities Committee comes with Mr. Hasty, their Advisor, in a truck loaded with presents for every child in our building. They participate in our Holiday Sing-a-Long and then spend time with the preschoolers and their family members chatting, playing games and eating pizza. Watching our preschoolers open their gifts with excitement puts smiles on the faces of all of the Cheltenham students. I also see this relationship as a gift to the high school students, because they are learning the importance of giving and making a difference in the lives of others.

We so appreciate their generosity and look forward to continuing this tradition with Cheltenham High School for many years to come.

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